Detall de la convocatòria

Característiques

Característica
Objectiu de la convocatòria
Funding for collaborative teams bringing together patient-led rare disease organizations and research teams for 4-year research projects aimed at advancing our understanding of the fundamental science of rare diseases.
Característiques principals
Patient-centered and foundational science-focused, this RFA aims to expand the understanding of the pathophysiology and mechanistic underpinnings of rare neurodegenerative disease and to channel the focus of research efforts towards issues and questions that are critically relevant to the patient experience. This RFA will not focus on therapeutic or clinical development. However, in centering the work on foundational science and closing critical knowledge gaps, these projects will build a strong foundation for translational efforts. We also see tremendous opportunity for the study of these rare neurodegenerative conditions to inform our understanding of neurodegenerative diseases more broadly, including common diseases.
Team composition: Collaboration is a central feature of this RFA and grant program. Applications will each have two lead Principal Investigators (PIs): one representing the research team and the other representing the patient organization. Teams should be made up of a minimum of two investigators with a maximum of five investigators, including the patient organization leader. Applications should be co-written by the researchers and the patient-organization representative. Applications will be accepted from newly formed collaborative teams who have not worked together previously or established researcher-patient organization collaborative teams who are proposing new research directions. We will prioritize teams that are taking a fresh, innovative approach to tackling these challenging diseases.
Lloc de presentació
El personal de l'IMIM i PSMAR que necessiteu més informació adreceu-vos a:
Servei de Recerca. C/ Doctor Aiguader, 88. 08003 Barcelona. Tel.: 93.316.04.00.
• Carol Barnwell, cbarnwell@imim.es. Ext.: 1670
• Marta López, mlopez4@imim.es Ext.: 1576
Convocatòria (URL)
https://chanzuckerberg.com/rfa/patient-partnered-collaborations-ppc-for-rare-neurodegenerative-disease/
Requisits
  • Each Coordinating PI and patient organization may only submit one application to this RFA.
  • Each application should designate one Principal Investigator (PI) as the Coordinating Principal Investigator (Coordinating PI). Note that institutions outside the U.S. may not subcontract to U.S. institutions, so please be mindful when selecting the Coordinating PI/institution.
  • PIs/co-PIs must have an academic appointment and be in an independent faculty position or equivalent at an accredited college, university, medical school, or other research facility at the time of grant start. Independence is demonstrated by institutional support for independent research activities.
  • Collaborators from companies are permitted as long as no funds are requested to support them or their work and there is full compliance with CZI policies regarding open science.
  • Early-career investigators are strongly encouraged to apply as Coordinating PIs as well as co-PIs.
  • Patient organizations must be patient-led rare disease organizations

    Please check the guidelines for complete eligibility requirements.
    • Dotació
    $2,000,000
    Durada
    4 years

    Arxius

    Arxiu
    PPC-ND-RFA-Announcement-and-Instructions-COMBINED-FINAL.pdf
    Instructions-Patient-Partnered-Collaborations-for-Rare-Neurodegenerative-Disease.pdf